Living with Chronically Painful Disorders

Reflex Sympathth_CRPS-Razorbladesneedles-Valerieetic Dystrophy Syndrome is only one of many chronically painful disorders. Living with any chronically painful condition, is not an easy existence. For most who suffer from chronic pain, it is an invisible disorder. Some are able to go to work every day, and they manage to live some semblance of a normal life. Many mask the pain by smiling and saying “I feel fine”, when asked how they are doing when nothing could be farther from the truth, because they really want to cry because of the pain. Sometimes they will try to explain what it is like to suffer from chronic pain to someone who asks. In some cases, after explaining how it feels the responses are hurtful. For example, some respond with “Take an aspirin”, “You’ll be okay”, “It can’t be that bad”, “You look fine”, and the list goes on and on. Those who respond in these ways don’t intend any harm, but instead they simply don’t understand. Coping with chronic pain is very personal, because people deal with the pain very differently. Some attempt to ignore the pain, by busying themselves with something, while others simply can’t ignore it. In other cases, the pain and other symptoms, are totally disabling. I read an article titled, “Pain Is…Depressing!“, which was written by a friend of mine. In the article, she describes how devastating living with chronic pain can be. Some patients even go into denial. When I saw the RSD spreading, I was one of those patients who went into denial. At least, I made an attempt to. All who suffer from chronic pain, normally suffer from bouts of depression. Most patients suffer from situational depression. Situational depression is “an episode, or episodes of emotional and psychological depression that occurs in response to a specific set of circumstances.” Some patients also suffer from more severe types of depression. In any case, patients should be treated for this symptom of chronic pain, just as it is necessary to be treated for any other symptom. Patients shouldn’t hesitate to seek medical attention for depression!

There are some general things patients can do, to manage their pain more efficiently. 1. Having a good support system, which may consist of family, friends, and medical specialists, is extremely important. Sometimes, those who suffer from chronically painful, disabling, and debilitating disorders, simply need someone to lend an ear. Laughter definitely does the body good. Spending a few lighthearted moments in conversation via telephone, brings a smile to a face that is often filled with pain! At other times, they may need help with daily living activities. It is also a good idea for family members and friends, to educate themselves as it pertains to the specific condition that their loved one is suffering from.

2.Taking medication at the same time each day, will ensure that the medication remains in the bloodstream constantly, to minimize flare ups and episodes of breakthrough pain. Also, keeping track of the medication, and the time taken, in a notebook will prove to be helpful. 3. It is also important to note any changes in pain levels, as well as changes in any other symptoms you may suffer from, due to a chronically painful disorder. Writing questions that you have for your Dr. in your notebook, will also prove to be helpful at doctor’s appointments. 4. Noting specific triggers, and attempting to avoid them can be very helpful when trying to cope with chronic pain. Certain activities, various types of clothing or footwear, not getting enough rest, stress, and chilly or windy weather, air conditioning, and physical touch, such as a hug or handshake, can be triggers of pain. This is only a short list of possible triggers. It’s very important for patients to be cognizant of what triggers their pain, and to try to avoid those triggers as much as possible. 5.The pain and other symptoms associated with chronically painful disorders, can cause insomnia. Very limited amounts of restorative sleep, prevents the body from “healing itself.” When sleep deprivation becomes a chronic issue, it is necessary to consult your doctor about this problem. Patients should never attempt to deal with insomnia without the help of a medical professional! 6. I have found that my faith in God, is the best coping mechanism that I could ever have! Had it not been for my faith, I actually don’t know how I would be able to manage the daily struggles that I face, living with a chronically painful syndrome. My belief that God is with me, and taking me through the struggles, is truly what sustains me. I believe in the power of prayer! I believe that God answers prayer! Had it not been for the Lord who was on my side, I don’t know what I would do!

Hopefully, this information will be helpful to someone who may be struggling with chronic pain, and feels as if they are the only one dealing with it. You are not alone! Feel free to add a comment, ask a question, or share your methods of coping with chronic pain, on a daily basis. The video depicts a woman who suffers from various invisible chronically painful conditions, including RSD. Near the end of the video, she will share how she had been mistreated, because it was not apparent, that she is disabled, and suffers from several chronically painful disorders. May God bless you abundantly, today and every day.

Note: Please read the disclaimer.

Enhanced by Zemanta
Advertisements

13 comments on “Living with Chronically Painful Disorders

  1. Dear Paulette,
    This is a great article…your advice for people who suffer with chronic pain is informative and timely.
    I am honored you linked to my blog; thank you so much!
    Bee well, my friend, and may God bless you today and keep you in his gentle arms.
    Love,
    Barbee

    • Hi Barbee,

      Thank you so much for your comment. This is a very sensitive subject for me, as I’m sure it is for you, and countless others! When I read your post, I was literally moved to tears. After reading it, I realized it was a perfect description of “living with invisible chronic pain.” Thank you for permitting me to link up with you. I would also want others to read your article, which is why I am providing the link once again in this comment. I’m hoping you are getting a reprieve from the pain today! May God continue to bless you, and keep you in His loving care!

      Please read: Pain is… Depressing! http://beegraziani.wordpress.com/2011/06/30/pain-is-depressing/

      Paulette

  2. Hello Paulette
    Really good post. You’re so right. People who’ve never lived with daily pain have no idea what we go through, while your pain in ways is different from mine, it’s still daily pain. Some days are better than others and the rudeness about oh you look so good, looks ain’t got nothing to do with this pain! I suffer from Arthritis and Fibro,which also causes bouts of depression,I’ll sometimes find myself crying for no reasons at all. (You said: Had it not been for my faith, I actually don’t know how I would be able to manage the daily struggles that I face, living with a chronically painful syndrome. My belief that God is with me, and taking me through the struggles, is truly what sustains me. I believe in the power of prayer! I believe that God answers prayer! Had it not been for the Lord who was on my side, I don’t know what I would do!) That is exactly the way I’ve made it through,my faith in the true and living God! Thanks for sharing I know many others who suffer in silence will also be blessed by the read.
    Love you 😀 😀

    • Hi Pat,

      Thank you so much for this heartfelt comment! Apparently, this topic struck a chord on your heartstrings, as well. As you passionately said, “people who’ve never lived with daily pain have no idea what we go through.” Though we suffer from different illnesses, the chronic pain that we live with daily, has a way of turning our lives inside out, and upside down! I am so grateful to have Christ in my life! I’m not sure there would be any coping going on, if I didn’t have the Lord in my life, and on my side! Praise God! Just when I think I get to the point where I just can’t bear another pain or symptom, here comes my Jesus stepping right in!

      I am sorry, that you too suffer from chronic pain, but thank God you are making it, because of your faith in the true and living God! Thank you so much for your support. May God bless you. I will be praying for you, and I solicit your prayers, as well!

      Paulette

  3. Thank you, Minister Paulette

    My heart goes out to those who have to walk through this. I will continue to pray as you have requested.

    Please be encouraged as you help us understand this ‘battle’ even as you fight through it. May God strengthen you and give you much peace.

    Heading over to Bee’s.

    Blessings,
    ann

    • Hi Ann,

      Thank you very much! Providing information about this topic, as well as the Gospel of Jesus Christ, gives purpose to my life, again! I truly thank God, for this outlet. It is my goal to be a support to others who are suffering! The fact that the information is appreciated by you and others, means so much to me. Probably more than I can express to you. As always, thank you for the prayers. I know the effectual fervent prayers of a righteous man availeth much! We serve a miracle working God! I’m so encouraged by you and others.:-)

      May the blessings of the Lord, continue to rest upon your life!

      Paulette

  4. You are helping all of us, whether we suffer from chronic pain or not! What a ministry He has given you. My mom has a lot of pain, and it hurts me to know she is hurting so much . . .and I can’t do anything much to help. 😦 It has been difficult for her to gain the support she needs at times from family members and even doctors. Thank you for listing those steps. I will share them with her! God bless you, Paulette, and comfort you as you keeping going and serving Him!

    • Thank you so much, Debbie!

      I am so sorry your mother is also struggling with pain on a daily basis. I don’t know what area you live in, but there may be programs available to help your mother, if her pain has gotten to the point where she would need daily living assistance. It’s unfortunate, that doctors sometimes can offer very little assistance to chronic pain sufferers. I will keep your mother in my prayers. My heart goes out to her!

      Thank you for your support, Debbie. It is much appreciated! God bless you!

      Paulette

  5. Hi Paulette
    As one who enjoys incredibly good health, my heart goes out to people like you who suffer so much pain. My sister, who suffers from arachnoiditis and many other problems is one who suffers greatly, but in spite of the pain she is an inspiration to many as she maintains a happy nature.
    Continuing to pray for you
    Angela

    • Hi Angela,

      I thought about writing a response to your comment on Barbee’s blog, when you left a comment that spoke of the illness your sister suffers from. Shortly after reading your comment, I read a bit about it. I was surprised and saddened. It’s wonderful, that she is an inspiration to others, in spite of the daily suffering she endures. I am so grateful, to have Christ in my life! In spite of my suffering, I have a praise in my heart, and on my lips for the Lord! Praise God! My faith has been built up, and I have grown in the Lord a great deal, for which I am so thankful!

      You are truly blessed! I am happy for you. So many who enjoy good health, take it for granted. Thank you so much for your prayers. They are greatly appreciated! May you continue to be in excellent health! 🙂

      Paulette

  6. Hi Paulette, I thought that I would come and visit you and I’m glad that I did. Having fibro-myalgia myself combine with the MS, I suffered real bouts of depression for a while. It’s much better now, thank God, but I can totally sympathize with everything that you have said here! Thanks for the song you left me, I cried through most of it but they were the good tears. I shared it with my daughter too. She needed that word and blessing as well. Thanks again and God bless you greatly, Teresa

    • Hello Teresa,

      Suffering from fibromyalgia and MS, is a double whammy for sure! I’m so glad the MS has gone into remission! I do hope and pray it stays that way!

      I’m so glad you were blessed by the song. When I heard it, my heart was touched, and I have listened to it several times over the course of this week! God knows what we have need of, and when we have need of it. He will definitely supply all of our needs, according to His riches in glory! Thank you for stopping by. I enjoyed your site, and I will visit again soon. God bless!

      Paulette

Leave a pearl of wisdom

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s