November – RSD Awareness Month

Although not recognized by every state in the USA, November is considered RSD Awareness Month, in many states and other countries worldwide. Therefore, I would like to begin this article by discussing the lack of awareness of this syndrome, by patients and physicians alike. It is quite a sad commentary when going to a doctor’s office, an emergency room, or some other type of medical facility to receive help because one is experiencing extraordinary pain, as well as other extraordinary symptoms, and patients are often looked upon as not being truthful about their pain levels, or as simply seeking a way to obtain drugs for recreational purposes. It is a known fact, that when individuals are in medical school, very little time and attention is placed upon the treatment of chronic pain, or chronically painful disorders! Why is this the norm? Research has now shown that chronic pain is an illness or disease, in and of itself. It is not just a symptom of another illness. It is an illness that needs to be taken seriously, and addressed properly by the medical community. It’s time to stand together as a united front, to bring about awareness now. That means physicians, patients, family members and friends alike, standing together to do whatever they can do, to help to bring this syndrome to the forefront of medical research.

Perhaps I have placed the cart before the horse. What is Reflex Sympathetic Dystrophy Syndrome/RSD, or Complex Regional Pain Syndrome/CRPS? RSD/CRPS is a chronically painful and debilitating neurological syndrome, that effects the central nervous system, bones and joints, and skin and muscles. To read more about RSD, click here. On this webpage, you will find links to other articles, which are featured on this blog.

Below, I will list facts and statistics that explain the dire need for awareness to be brought about NOW. Thanks for reading this article. God bless!

  • Although complex regional pain syndrome (CRPS) was first described in Civil War veterans more than 140 years ago, it remains a poorly understood and sometimes undiagnosed disorder that may affect millions of people in the United States alone.

  • Although the actual prevalence is unknown, CRPS is not a rare disorder. According to the Reflex Sympathetic Dystrophy Syndrome Association of America (RSDSA), CRPS may affect millions of people in the United States. Unfortunately, because symptoms vary so widely many people are not quickly diagnosed with CRPS.

  • Medical science has not yet determined the real cause or causes of CRPS, but a number of precipitating factors are linked to the onset of CRPS.  Most cases of CRPS begin after mild to severe trauma such as any injury, illness or procedure.
  • Treatment of CRPS requires a team approach – you, your healthcare providers, and others involved in your care. You may need a combination of treatments. These may include medication, nerve blocks, physical and occupational therapy, psychotherapy, spiritual counseling, and biofeedback. You may need more controversial and unproven interventional treatments such as permanent nerve blocks, or external or implantable pain-relief devices.

  • The long-term outcome of CRPS is usually better if it is diagnosed and treated at an early stage.

 

5 comments on “November – RSD Awareness Month

  1. Thank you for letting us know that it is RSD awareness month, so we can join with you, in prayer and voice, to help get the word out. It can be so frustrating to not be believed or to be misunderstood when you are in such pain and needing help. You, sweet one, are giving those affected hope and compassion and understanding at what they are going through. God bless you! love and prayers as you do all you do each day.

    • Debbie, thank you so much for caring! Thank you for joining in prayer and voice, to help to bring about awareness of this syndrome. Thank you, thank you so much for keeping me in your prayers! That means so much to me. The word tells us, “The effectual fervent prayer of a righteous man availeth much.” May the Lord bless you, abundantly! Love and prayers!

  2. Worldwide Awareness Campaign Please Help

    People and sites from around the world are coming together to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness Month.
    Please spare 5 1/2 mins to watch this video but be aware you may find some of the images disturbing.

    it is vital that you watch it to the end
    If you are newly diagnosed I strongly suggest you do not watch it.
    If you live in the UK please sign http://epetitions.direct.gov.uk/petitions/31344
    E-mail the link to your MP asking why since being informed on 30/10/2010 David Cameron, Nick Clegg and The DOH have refused to do anything about the situation.
    You can also send it to some members of the House of Lords.
    http://www.parliament.uk/mps-lords-and-offices/lords/
    No matter where you live in the world can you please sign here http://www.pledgebank.com/RSDCRPS
    http://you.38degrees.org.uk/petitions/worldwide-rsd-crps-awareness-campaign
    http://www.thepetitionsite.com/460/118/995/worldwide-rsdcrps-awareness-campaign/
    http://www.change.org/en-GB/petitions/goverments-worldwide-un-world-health-organisiation-find-the-millions-of-un-misdaignosed-rsd-crps-sufferers-across-the-world
    http://www.ipetitions.com/petition/worldwide-rsdcrps-awareness-campaign/
    http://www.gopetition.com/petitions/worldwide-rsd-crps-awareness-campaign.html
    http://www.activism.com/en_GB/petition/worldwide-rsd-crps-awareness-campaign/40439
    http://www.causes.com/causes/800617-worldwide-rsd-awareness-campaign/actions/1700679
    http://www.petitionbuzz.com/petitions/worldwidersdcrps
    http://www.petitiononline.com/RSDCRPS1/petition.html
    http://www.communityrun.org/petitions/worldwide-rsd-crps-awareness-campaign-1
    https://petitions.whitehouse.gov/petition/take-immediate-action-inform-medical-professionals-existence-rsdcrps-most-painful-incurable/SFkd2cS6

    If you live in another Country can you start your own petition and send the link to your own Politicians
    If you are willing to commit to spending 15mins a day for 4 weeks then 15mins a week to help spread this then please e-mail me on.
    RSDFighter@hotmail.co.uk or join me on facebook
    Kevin

  3. Pingback: Autumn Stevens struggles with Reflex Sympathetic Dystrophy « Monsterphotoiso's Blog

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